White Cells Raising

Finally, after a week of waiting, my white blood cells arrived. Just in time for Christmas!

Apparently white blood cells – and specifically something a call Neutrophils – are the key to my immune system (and probably your’s as well)  – So the fact that they are finally kicking in and being produced again is a good sign and greatly increase my chances of staying home until its time to go back in and kill them all over again.

That’s today’s good news.

Otherwise my days at home are largely spent lounging and relaxing.  All things considered, life is pretty good.

No White Blood cells, No Hair, No Problem

Yepp, still no sign of life on the white cells. But any day now.

I started shedding like a golden retriever yesterday so I shaved my head. I gave myself some silly haircuts along the way- I noticed that I look just as cool or silly with those cuts now as I did in high school. Its cold being bald, especially in winter – but hopefully in a about 6 months my bald head will be a distant memory.

Bald heads and white blood cells are only secondary right now (well, the white cells are actually really important). But they let me come home for a few days. So as I write this little entry I am sitting at home looking at my Christmas tree next to my wife who is sound asleep on the sofa. That beats sterile hospital room any day.

I don’t know how long I’ll be home for but if everything goes well it should be for a week or more. Stop by if you’ve got a few minutes. I’ll be here.

Hotdogs and Perspective

It was date night at the hospital tonight.

May came in and I took her out to the convenient store / gift shop for a hotdog.

As we sat at the table eating and chatting away we watched the Christmas light flicker and the people strolling by. Back and forth, back and forth. Some people were celebrating their exam, some people were visiting loved ones and other were being admitted for the first time.

It was a swarm of people covering every stroke of the human condition.

May pointed out that in the big picture this cancer diagnosis is just a blip.

As people with serious conditions, terminal illnesses and life-long afflictions walked by, I knew she was right. In a few months all this will be behind me and I will be off on new adventures. That is not the case for a lot of people. While my story isn’t as happy as the new parents pushing their newborn in the trolly, it isn’t anything to mourn over either. I’ve got this and God’s got me.

Finally, Some Progress… and I’m Feeling Loved

So it’s all good news today.

I took a bone marrow test this morning to see if the chemo had done its job and IT HAS! I am, for the moment, cancer free, and there is a glimmer of what the future holds.

I can go home for a little while once my immune system kicks back in (which should happen in the next few days).

This will be followed by a smaller chemo round to make sure that everything that is dead stays dead – until I can get a stem cell/bone marrow transplant sometime after Christmas.

That was my progress.

In other news… My wonderful wife set in motion a project to assemble an advent calendar for me.  She contacted friends, family and co-workers (who are also friends) and the result was overwhelming.  So many people have responded and given to bless me.

Thank you all.  I’ve only opened two gifts so far so I haven’t seen everything yet but I will get there by Christmas Eve.  You are all appreciated and I am thank for each of you. Thanks again.

Jesus Loves You

I often write about how blessed I am and how good God is to me and how glad I am that He loves me.

But I guess I should also tell you that Jesus Loves you too.

Even if you don’t believe in Him, or if you’re mad at Him.

If you’ve never thought about Him or haven’t thought about Him since you were a kid.

Jesus Loves You – just as you are, right where you are.

Warts and all.

He Loves you and would love to get to know.  Think about it.  If you have any questions or want to talk feel free to reach out.

No Gnus is Good Gnus

Hi – Sorry for taking so long to update.

But there is literally nothing going on and nothing to report.

I am caught in some sort of limbo between sick and healthy – I’m healthy waiting to get sick and at the same time sick, waiting to get healthy.

So here I sit in my little white room overlooking the courtyard with no birds or apples, wondering if its all a conspiracy against me.  I still have my hair, but have no white blood cells.

I’m not loopy, speaking in riddles and secret codes- this is the actual state of my existence.  Hopefully by the end of the week I’ll be either sick or healthy(er).

In the meantime I thank God that I am still here and have such an awesome support system around me and that much of that support system supports my family who are on the front line taking care of everything while I sit here and wait. I can honestly say I have the best family, friends, church, job, and network a guy could have.  I am truly am blessed.

 

Happy Thanksgiving!!!

Sorry I was such a bummer yesterday.  Yesterday was actually a really good day.  I guess I was just feeling a little sorry for myself and missing some of my traditions.  Tis the season.

So I’m still in the hospital, but I’m doing fine and hope to be able to go home for a little while. Of course that all depends on how healthy I stay.  I am supposed to get a fever at some point.

May visited yesterday and swapped out the laundry and took me on a hotdog date. It was so good.  She is  so good and patient and sweet.  If any of you want to send her a card of encouragement please do.  She really has been a rock during this adventure. I love her so much.

I found out that one of the nurses here is a YWAMmer. (no names) They’ve been an extra bright spot in an otherwise dreary world. Always nice to be able to talk about God with someone.

I had the gauze removed from my nose. May filmed!!!   Now I can breathe with my mouth closed.

Yesterday was actually full of bright spots.  I can’t name them all here, but God really blessed the Howards yesterday.  We have so much to be thankful for.

I’ll keep it short and let you get back to your turkey dinners. Happy Thanksgiving to all!!!

Bloody Nose And A Bit Of A Bummer

Sorry I haven´t written in a few days. It´s been a rough, boring couple of days. But now I’m back. I’ll give you a quick rundown and then philosophize.

Sunday, I finished my first round of chemo.

Monday, I was wiped out and slept most of the day.

Tuesday, Jakob and Hannah came for a visit and brought me cheeseburgers. They were definitely the bright spot (the kids, not the cheeseburgers). I got a bloody nose that wouldn’t stop and the maintenance crew raked up the apples and now the birds are gone  But apparently the big rat is still there. In the evening they took me to see an eye, ear & throat doctor because that bloody nose had been raging for nearly 6 hours, despite two different clotting medicines and a bag of platelets.  I will not go into detail about what happened in that room, but I came out not bleeding and have one hundred yards of gauze packed into my right nostril.

Now your up to speed. Nothing has happened today except I finished up Andor and am currently watching it snow.

Most of what’s been going on here has been going on inside my head. I was thinking about what I wrote earlier about things being better here this time around. I am so grateful that things are better. Not much in life actually changes for the better. I guess medical treatments improve – My marriage gets better every day, My relationship with Jesus, and probably a few other things, but not much.

When I was kid I was oblivious to what was going on around me, let alone what was going on in the world. If something big was going on I usually only found out about when it interrupted my life, like a new bulletin interrupting my TV show. Life was easy. I played, I watched TV, I slept and went to school. It wasn’t more complicated than that. There weren’t the social pressures kids have today or the material need for every new thing that came out. If saw some awesome new GI Joe or Transformer toy in a commercial, I could want it, but I knew that my chances of getting it were 0, outside of Christmas or my birthday (I guess I could have bought it, but at that age most of my cash came around Christmas and my birthday).

As far as I remember everyone at school was nice to everyone else. We could fight as kids but never over anything important.

We had to wait and be on time. Apparently those are skills which are learned, not just virtues we display. Cartoons were on when cartoons were on. Your sitcom was on when your sitcom was on. If you were doing something else you missed out. Today you can record any show that’s on or stream any one that isn’t, I’m sure that that is a good thing.  Prioritizing and keeping a schedule seem optional today.

With cellphones you no longer have to keep plans. You can call and back out 5 minutes before your commitment starts. You don’t even need to call you can send a text and never have to look the person in the eye or speak to them. The threshold for backing out has been removed.  It keeps people non commital so that if something more fun or perceived better pops up, they can ditch commitment and go to the next until the next and better thing comes along.  I bet that hurts a love feelings and wrecks a lot relationships.

This is the world that are kids are living in and its not an improvement. Ear thermometers are better than rectal thermometers but the world isn’t a better place. And its not because of the climate, or hate or any of the other things we’d love to be able to blame it on. We’re letting the world get smaller and more impersonal and we’re buying into it.  Nothing is special anymore, you can do what you want when you want it with no problem. I wish my kids could experience the magic of the Sears Christmas catalog, wanting something bad enough to save up for it instead of asking for it, I wish they could be out all day, unconnected, with “be home for dinner” as their only instructions. That’s the world I want my kids to live in, even if they don’t have ear thermometers.

A Room with a View

I am starting to feel the effects of the chemo therapy. So far it is just headache and drowsiness but I know that the rest of the goodies are just around the corner so I am trying to stay as busy as possible until I can´t be busy anymore. I stay safely tucked in my room with my books, computer and decorations. My niece Oline made me a beautiful card that I hang up on the board and she also made me a nice advent star for my window in case I don´t get any.

Outside my room it´s cold and dark and the apple tree has dropped all its apples. I watch the birds fight over the seeds and flesh, intermittently being disturbed by a giant brown rat running around the court yard.

May came to visit around 2. She brought some of Brendas delicious baked spaghetti. Thank you Brenda!!

You may remember from the first round I blogged that I used to write a little on the bright side segment. I am working on it but I am not quit there yet. Still sifting through a lot of emotions, questions and what nots. I haven´t lost any of my faith, God is still God and I still believe His promises for me. But the state of mind I am in now I’d just be selling you sunshine and rainbows but nothing real.

Rectal Thermometers and Daytime TV

It’s been a busy busy day today, but we are finally on our way.

I woke up to blood tests, then an IV and a platelet transfusion – all before an 8:00 appointment to have a Hickman chest catheter installed.  After that I took an X-ray to make sure everything was in place and came back to my room to start the first of two daily chemo rounds, followed by an electrocardiogram (ECG) and a visit from May with enchiladas- (which I promptly ate before the nausea from the chemo kicked in).  And it’s not even 3:00 pm yet.  Still lots more to come too.

As I mentioned in yesterday’s post I’m back in familiar surroundings here at Rikshospital. This morning I even had a nurse who remembered me from last year. Things are very much the same but there are a few differences from last time.  All for the good.

The food is a million times better. Last year I was here during what the Norwegians call “fellesferie” (when all of Norway shuts down in the middle of summer and everyone goes on vacation) – anyway no one was maning the kitchen last year and all the food was brought in prepackaged. Take it or leave it.  This time around there is a nice staff in the kitchen (we have our own little kitchen here in the ward) – they make food and if you don’t like what they are serving (chemo patients can be very picky eaters) they will, to the best of their ability, make you whatever whatever you like.

Another difference this time around is that it’s winter, which means its dark and easier to sleep.

But my favorite difference, and this is a big one, is the new ear thermometers.  There were two things I was fearing more than the chemo, nausea, hair loss and general poor health – rectal thermometers and daytime TV.  Last year we had to take out temp twice a day, the old fashion way.  This year we take it in the ear, much more enjoyable.  This was a big relief to me and almost as good news as the doctors gave us yesterday (not really, but I was not looking forward to rectal thermometers)

Daytime TV is unfortunately still daytime TV – so I read and listen to podcasts instead.  I also have my streaming services for when things get desperate.

Considering the circumstances I’m in good spirits.  The ill effects of chemo haven’t kicked in yet and I’m trying to enjoy myself as much as I can until I can’t.