Day 11 What Are You Worried About? (Friday 25th of June)

Round one of chemo is history. It’s nice to be free of the stand that I’ve been dragging around for the past week. Though I still need it at night for antibiotics, electrolytes and anything else to wake me up for 30 minutes while they add it or change it. 

I said yesterday that I would discuss why I am not scared of this fight I’m in, so here goes. Both my wife and I have such a calm over us that it can’t be anything but supernatural.  I am a details guys and my wife is an anxious worrier, so left to our own devices we would be asking and looking and reading and worrying and fretting about everything.  But we aren’t, both of us have peace, total and deep peace.

I’ve mentioned the enormous outpouring from all around the world. It has come from old friends, family members of friends, friends of friends. It’s stirred things inside of people I didn’t think could get stirred up. All of them have kind words, but some of them have messages, and consistently throughout the entire journey, no matter the relationship, the source or medium, the that message has been the same, that God is using this cancer battle for something beyond me. I figure that if I am part of His plan, I’ve got nothing to worry about.

And if the absolute worse does happen and I die, I know what is going to happen to me. I know what the next step is and it’s nothing that I am afraid of.  I’ll be in Heaven because I believe in Jesus and accepted His sacrifice for me. 

On the bright side

It’s all bright side today baby! No chemo, no fear and lasagna for dinner.  

Day 10 The Question of Anger (Thursday 24th of June)

There are two questions I’ve been asked pretty often since this happened to me, I am I scared? and am I angry? Those haven’t really been issues for me, so the short answer has always been a simple no.  But since they keep coming up, I thought I’d go a little deeper into why I’m not scared and why I’m not angry. I’ll deal with anger today and fear tomorrow.

To be angry it would imply that there was someone or something for me to be angry with and that that person or thing had somehow done me an injustice. Neither of these have happened to.  I got cancer and it sucks, but it happens. It happens because we live in broken world where lots of horrible things happen every day. And this happened to me.  I don’t need to happy about it, but I do need to deal with it.  It’s the old “when life gives you lemons…” adage playing out here. There is no reason to waste your energy being angry, looking for someone to blame. Use your energies to heal and inspire others if you can.  And honestly as bad things go, getting Leukemia in Norway doesn’t rank that high on the crappy list.

There is real justice in the universe, its God’s justice, which is not the type of justice that determines whether you get cancer or win the lottery.  God’s justice is about bringing love, healing and restoration.

On The Bright Side:

May got her first covid vaccine today

Day 9 Crawling Out Of The Sewer (Wednesday 23rd of June)

After feeling like I’d been shipwrecked in a Scottish toilet for two days, I woke up this morning a new man.  More energy than I’d had in days and feeling pretty good. I sprung out of bed and did my thing like Mary Poppins. When I was finished I was out of energy but still felt well enough to continue my food quest.  So I grabbed a yoghurt, an egg a piece white bread (a rare commodity here in Norway) and it all went and stayed down. Same for lunch.  So having proved my hypothesis correct, I concluded the study. It has almost nothing to do with the food, its all up whatever is going on in my belly.

I have been running a fever of about 103 since Sunday. With everything else going on in and around me I have really noticed it.  But I have because I have to record my temperature and weight each morning and evening. And we do it the old fashion way because the old ways are the best ways. Even though they have machines that can scan your temp from three feet, or take your temp in your ear in about 3 seconds, but I guess nothing is quite as accurate as a good ‘ol rectal thermometer. It makes me ask myself, how does it get so warm where the sun don’t shine?

On the bright side:

I did not have to eat or smell the horrible sour cream porridge that Norwegians eat on this day each year.  I guess (probably from experience) the hospital kitchen knows better than to try and serve that stuff to a bunch of nauseas sickies.

Day 8 Another Day Afloat (Tuesday 22nd of June)

As days go it wasn’t the worst day (that would have been yesterday) but it wasn’t the best day either (comes behind pretty much every other day except Monday). Still running a fever and feeling generally crappy but trending upward.  Today I started to chart what I can and can’t eat.  My scientific conclusion at this early stage in the project is that it doesn’t matter one bit. With my immune system down my gut has changed, from an iron chamber that could digest wood and feathers if it needed, in to fickle diva, who might crave an orange one minute, then spit it back out an hour later. Or maybe keep it down all day or maybe she releases it into the bowels to be dealt with another way.  There is no rhyme or reason.

The encouragement and kind words and songs keep pouring in. It has been absolutely amazing who has written to me and how they have responded. God is full of surprises. I appreciate every message and I’m sorry I don’t write back in kind.  The past few days I haven’t been able to manage much more than a thanks. This blog is in part my response to the many many well wishes and encouragement that has run in.

As I lay in bed trying to pray and trying not to throw up on myself, I get the impression that its ok to just bask sometimes.  God knows my heart and where I am.  I am not always on but it  is ok to just soak up His love. And that is what I am doing.  Each message of love and encouragement is being absorbed so that I can use it to love and encourage others. 

On the bright side

I think I kicked my coffee habit. I don’t like being addicted to things and caffeine has always had her powerful grip on me. It helped that the coffee here is horrible and the amount of coffee you get when you push the button on the machine isn´t enough for a proper cup of coffee but is to much to fit two servings in a cup

Day 7 Wiped Out (Monday 21st of June)

It really was the longest day.

I needed a day off from everything.  If you wrote on Monday and I didn’t write back or just gave a short reply it’s because I was out of it.  I got to enjoy all the side effects of chemo yesterday. I did a few things on my list but didn’t even bother trying to get it all done.  But we won’t discuss that here because as Thumper said “if ya ain’t got nothin’ nice to say then don’t say nothin’ at all.”

Another rough part about yesterday was feeling disconnected from God – I couldn’t pray – my mind would wander, or I would fall asleep. I couldn´t concentrate or recite scripture.  So I read a little in my Bible and then just put in some music and trying to sing along with some worship music.  Later in the evening I spoke to May and she said that we were going to have to worship our way through this.  She is right of course.

On the bright side

I know that even when I feel far away or disconnected from God I’m not.  I know He’ll never leave me and that I am in His hand. 

An interesting aside:

I kind of figured I would lose my hair. I wasn’t sure how long it would take and since we’re not googling things, we didn’t google this either.  But I figured it would be soon than later. So when we packed Friday, we both laughed a little, no, I would not need to pack hair brush, shampoo or a razor.  Well, 4 days in, and I still have a full mane (maybe 2 or 3 strains less). Thank you Dad, for an amazing head of hair. And if you know me, you know my hair grows upwards and outwards, and it gets big and crazy, like Kramer.

Day 6 It’s Not What I expected (Sunday 20th of June)

I am drained.  I thought that the feeling sick part was going to the worst but for right now it is the complete lack of energy. I could have slept all day if I’d allowed myself.  Luckily I have my to do list and if I have a list, the items need to be checked out.  Sometimes my motivation for doing things isn’t to do them and get healthier, its to be able to check them off the list.  Call me crazy.

Speaking of crazy. I had a fever induced dream last night. The kind you only get when you have flu or take sleeping medicine.  I was chasing Aslan down the halls of the hospital and we were trying to figure out who stole all my blood and how to catch them and get it back. I woke up before we ever figured out who the culprit was. Sweaty and shaken, I took my temp and called the nurse who checked everything else and let me go back to sleep. It was the chemo that had caused the fever and not bacteria, so it was safe to let me go on.

Eating my way through this isn’t going to be easy as I thought.  I never thought that would be a problem but here I am force feeding myself grapes and nuts. Staying hydrated is going OK, two liters of water isn’t that much.

May came by and visited. And the kids all wished me a Happy Father’s Day (It’s US Father’s Day today.)  Unfortunately, I was so tired that I wasted most of my time with May. She is so patient with me.

On the bright side

I am so glad I have this Hicksman’s Catheter in my chest. With the number of medicines they are putting in me every day and the amount of blood they take out, I would be in absolute misery with all the needles and sticking I’d be getting.  But now I just lay there and they put in or take out whatever they want through one of the tubes coming out of my chest. Thank you God.

Day 5 Life in C3.2043 (Saturday 19th of June)

Day one of chemo is officially in the books. 

I also got my first blood infusion. Which is apparently completely normal for people in my position.  I’m A+ in case you’re wondering. 

All respect to blood donors around the world.  Thank you for giving! It really does make a difference.

I set up a daily “to do” list for myself.  Things I need to make sure to do so I don’t just lay in bed all day let my days slip away. Do now in addition to taking my temperature and weight everyday I’ll be doing exciting things like getting dressed, making my bed and getting at least five thousand steps. There’s lot more stuff on the list but I won’t bore you.  Just be assured that I’m not lazing about in bed all day.

I also discovered today that the Netflix button on the remote control is a lie.  Here I was bragging about it and turned out to be a hoax. Oh well, all the more reason to work on my to do list.

May came and brought me some food and clothes (some of Brenda’s pulled beef taco from last night. It was so good. Two thumbs up Brenda) Anyway, May and I took a walk around the halls, but she was being very careful with me, like I was made of glass, a fragile glass full of toxins.  She was just being careful. Luckily we spoke to a nurse who told us that there wasn’t really anything to worry about in regard to my toxins, nor was there much danger of her contaminating me with any of her germs since we’ve pretty much spent the past twenty plus years fusing our immune systems.  Hugging and kissing and holding hands is perfectly safe and is encouraged. So we are kissing and holding hands as we walk up and down the hall ways – Apparently at some point it will be my own friendly bacteria that will take advantage of my absent immune system and rebel against me. Or like the nurse said, “the parents (my immune system) are gone and they are having a home alone party

On the bright side

I’m a day closer to being out of this mess and going home. 

Day 4 Here We Gooooooo! (Friday 18th of June 2021)

Things move quickly in this little country. When I woke this morning, I expected to spend another day on the sofa, taking it easy, eating and holding court like Jabba the Hutt. Our friend Brenda is bringing pulled beef tacos for dinner and I was really looking forward to that. But like everything else this week, someone else had another plan. 

The doctor from the hospital in Oslo called around midday and said that part of the test results were in and that if I could get to Oslo fairly quickly we could start treatment today.  We figured the sooner the better. And I kind of like it when things happen so quickly because I don’t have much time to think and over think and get scared, I just have to react. 

We jumped in the car and May got us to the hospital around 2pm where we met with the doctor. This was the small print doctor.  All the other doctors to this point had been pretty positive.  Today’s doctor had the unpleasant job of making sure that we knew there were risks and no guarantees. There will side effects and a bunch of stuff we all know but don’t want to talk about. Poor lady, that can’t be a nice job. 

After a few more tests and measurements I was led to my new room, where I’ll be living for the next few weeks.  Its not bad here, its not home, but its not bad, and as hospitals go, its pretty good.  I have my own room, with a door to the courtyard, a fridge, TV with cable and Netflix, an exercise bike and a DVD player. (starting to regret throwing all those DVDs away now). Oh, and 24-hour access to the little cantina where I can go get food and drinks whenever I want.  That will be convenient as I eat my way through this mess.

By 4:30 I was hooked up to the pumps and the chemo is pumping through my veins.  As I understand it, as long as I am doing the chemo treatment, my pee and blood are considered toxic biohazardous waste.  I should be able to cut through porcelain.  Any mosquito that wants to try his luck on my arm is more than welcome.

So, I am officially in the program now. So far so good, but its only been two hours. Next stop baldness, nausea and retaining massive amounts of water. 

On the bright side

We had to start sometime and why not Friday instead of Monday or Tuesday.  I’ll be through it a few days earlier this way.  Encouragement keeps running in and I am reconnecting with people I haven’t heard from in years.  God is so good.

Day 3 Finding My Inspiration (Thursday 17th of June)

Not doing much of anything today. Just lazing about the house, thinking about how to beat this.

My wife bought me three Hawaiian shirts so that, ONE- I won’t have to pull T-shirts over my tubes and wires all the time and TWO- so that I won’t have to be the guy wandering around the hospital in the middle of the day wearing the hospital gown.  Instead I’ll be guy wandering around in the Hawaiian shirts and sweat pants.

I am finding so much inspiration and hope in my battle, but there are three cancer patients in my life that I am drawing inspiration from when it comes to my own motivation and hope.

   Example 1 Marianne was my nurse when I was in the burn unit as a kid. I spent about a month there with third degree burns on parts of my face. A less willing patient would be hard to find. I screamed and cried every time the nurses had to do their job. I certainly didn’t make life easy for anyone. But Marianne loved me anyway and we had a special bond.  We stayed in contact after I was released. We exchanged letters and I think I visited her once at the burn unit once during a checkup at the hospital. I would send her a Christmas card every year and she would send one back, usually with a cross stitched Christmas ornament (one of which still hangs on our tree every year.) 

    One year instead of a Christmas card I got a note from her parents saying that she had died early that year of Leukemia, the same disease I am fighting now. Marianne was always positive and strong, she never had anything except a smile and kind words for me or anyone else. Marianne died nearly forty years ago, and so much has changed in the world of cancer treatment since then.  I have opportunities she never had and I am not going to let them go to waste.

    So I am going to try to be like Marianne and stay positive and kind throughout my journey, hopefully inspiring people along the way.  My victory will be in part thanks to Marianne.

 

  Example 2  Growing up in rural Maryland we lived next door to a very nice older couple. The Smiths. The type of people who would invite the neighborhood kids in for cookies and milk and buy whatever raffle tickets or chocolate bars you might be selling for your fundraiser. 

We would wave and smile through the window each morning one the way to the school bus or whenever we were out playing. 

   One day the Smith’s weren’t in the window even though their car was in the driveway.  Same thing the next day and the day after that.  Finally, we saw a very distraught Mr. Smith standing in his driveway looking into his open garage. We asked if everything was OK and he looked at us, completely shattered and revealed that Mrs. Smith had been diagnosed with cancer earlier in the week and had died the previous day.  He explained that she had just given up and died, even though the doctor’s believed they could help.

    Mrs. Smith’s refusal to fight and the effects of that decision showed me just how important faith and a positive attitude are, I can remember someone explaining it to me at the time.  All these years later, this episode and its lesson sit deep inside of me.  This example is a lesson and inspiration to stay positive, to keep my faith and to maintain a good attitude.  The alternative is not an option for me. I have too much to lose and I know God still has plans for my life.

 

Example 3 My last inspiration is my favorite.  A neighbor and good friend of mine her in Norway was diagnosed with a rare type of cancer, in the form of a slowing tumor several years ago.  Her prognosis for living a normal life after removal wasn’t good, as the tumor was growing along her spinal cord close to many nerves and arteries. 

Her attitude was as long as there is a chance, be it 1% or 100% there is reason to fight. No reason why she shouldn’t be that 1 in 100.  She decided that she was going to survive and focused all her energy on that goal, staying as positive as ever and working hard to staying focused and healthy and follow the doctor’s orders.

Guess what, it worked. Over ten years later she is still here, and not only still here but has since won Norwegian, European and world championship medals in bench press and even set a world record for her weight class in 2018.  I wish I could tell you the whole story because it is so much more inspirational than this snippet, but it’s not my story to tell.

But be assured I am leaning hard on her example of positivity and hard work.  I know that it can be done and there is absolutely no reason why I can’t do it.  I will beat this.

On the bright side 

Every hour, every day I am receiving affirmation and confirmation that there is a greater purpose to this battle than just getting me healthy again. Sometimes it’s a prayer or a word of encouragement, Sometimes it’s a verse.  Some of these words I will keep in heart and ponder, others I’ll share here.  One that came in today from a surprising source was a verse from Mark 11 – Jesus told the disciples to go into town and find a donkey He told them that if anyone asked what they were doing they were to say “The Lord needs it and will send it back shortly” He needed an ass back then and I guess he needs one now.  He’ll use me for His purposes and send me back shortly. What that purpose is, I have no idea but as I’ve mentioned before, I’m excited to find out.  

Day 2 Me & my Hicksman (Wednesday 16th of June)

No more bad news today.  Just woke up and realized that it wasn’t a bad dream and I actually have to deal with this crap.

I spent the majority of my day having a Hicksman Catheter installed in my chest to give the doctors easy access, in or out , a direct line to my insides. It hurts like #£$%& right now, but that will pass and in theory it’s the last hole they will have to poke into me during this process, so its worth putting up with. I haven’t even started the chemo treatments yet but I am walking around like a weary old man because of all the blood tests, bone marrow samples, catheters, ports, and tissue samples I’ve had taken out and put in over the past few days. 

I got discharged and sent home until my treatments start at some next week.  I’m hoping for a few uneventful days until then.  I’ll let you know.

On the Bright side-

Its kind of ironic that I have spent large portions of the past 10 years trying to lose or maintain weight and build a flourishing gut flora.  It’s been an uphill battle since I gain weight just by looking at food.  But the nurse told me today that I should fatten up and try to eat my way through chemo, because the patients who eat well and stay hydrated tend to be the ones who suffer least. I’m all for less suffering and I love eating. Win/win and its doctor’s orders. Let’s see how I hungry I am once I start chemo.

God on my side:

The outpouring of love and support thrown around my family has been incredible.  I am usually of the mind that people don’t like me until they prove otherwise.  I’m actually not that cynical but not too far off. 

Well let me tell you… within minutes of the first prayer requests going out to friends and family, the response has been incredible. And incredibly touching. Family, old friends, new friends, church friends, my kid’s friends, my co-workers, neighbors, just about everyone we’ve told has reached out – Most of the are praying for me.  I have people all around the world praying for me.  There has been an outpouring of offers of help from the people around us. My wife and I have decided to accept as much help as we can. I know from experience that being blessed is great but being able to bless someone else is equally great and we don’t want to deny our friends that return blessing.

God has placed such awesome people in my life, Christian and non-Christian.  It is such a blessing to see the groundwork that he has laid ahead of time for my time of need.

I would love to mention everyone by name but there are so many and I’m scared I might leave one out because of my cloudy stressed out hazy brain.